The Attack of Zach

Zachary's journey through diagnosis, treatment and daily mumbles about his body's attack on him!

Tuesday, May 3, 2011

Living Bendy: What is Hypermobility Syndrome/Ehlers Danlos Syndrome

Living Bendy: What is Hypermobility Syndrome/Ehlers Danlos Syndrome
Posted by Twins+2momma at 10:07 AM
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Blog Archive

  • ▼  2011 (8)
    • ►  October (1)
    • ►  June (2)
    • ▼  May (5)
      • Tummy Turmoil
      • Hot Tubbing!
      • Sleep Medicine Appointment and Bracing/Splinting
      • Living Bendy: What is Hypermobility Syndrome/Ehler...
      • Where Do I Begin?

About Me

Twins+2momma
Rochester, NY, United States
My name is Danielle and I am a stay home mom of 4 beautiful children. Our son, Zachary, who is almost 7, was diagnosed with Localized Scleroderma in October, 2009, Restless Leg Syndrome/Periodic Limb Movement Disorder in November, 2009 and then recently diagnosed with Hypermobility Syndrome in April, 2011. We do not have all of the puzzle complete but each day we take baby steps. We have not completely ruled out if he some form of JRA/JIA at this time, but will soon hopefully have answers. This blog is a much overdue way to share Zach's journey (and mine as a mother going through this roller coaster with him).
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  • OT (2)
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  • hypermobility syndrome (2)
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  • GI Issues (1)
  • Joint pain (1)
  • Localized scleroderma (1)
  • PT (1)
  • allergies (1)
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  • bracing (1)
  • fatigue (1)
  • joints (1)
  • methotrexate (1)
  • morphea (1)
  • muscle twitching (1)
  • sleep study (1)
  • splinting (1)
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