Zach has been out of school for 4 days now with horrible stomach pain. After another abdominal x-ray, it was determined that there was no improvement in his bowels and that he is still backed up and there is some blockage. Zach's very upset that we have to had to alter his diet this week and he is not allowed to have any starches or dairy. I promised to take him for a trip to Wegman's to pick out a special diet together for the week.
The docs have increased his miralax to twice a day and have doubled the dosage for each time as well. I can only hope that our efforts of extra fiber, extra h2o, mineral oil, epsom salt, miralax begins to work soon! He is barely eating for me and has cramping the minute he takes a few bites. He then complains of hunger... we try to eat again and the cramping is back. I cannot imagine how thin he is going to look by the end of this. :(
The hot tub is offering some relief to his stomach and back pain but he is not even feeling well enough to get in over the last few days.
Hiya sweetie, the poor fella`s having it so rough at the moment, your so brave and strong, your amazing, i sooooo wish i had a magic wand and could make everything about sclero vanish,in a way i feel lucky its me who has it and not my boy, he has his moments, he has some weird looking rashes on his back and has had a tumour removed from the bone below his knee, and i was completely useless!,am off for a sleep now,take care hunny, luv ali xxx
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